Country Ireland

Ireland - Ireland

Welcome,

This page is offered to you by EWMnetwork.
The goal is promotion of contacts between  WM patients  in your country.
In our country a small group of WM patients has contact with each other

If you would like more information or wish to contact and exchange experiences with fellow WM patients in Ireland please contact me."
.
Sheila Thomson: sheilathomsonmail@gmail.com

Information from the contact person - Sheila Thomson

email -   sheilathomsonmail@gmail.com

I would love to hear from anyone who has recently been diagnosed with WM and, of course, from anyone else who has WM or is interested in it.  I currently know of twelve WMers in Ireland.  There must be more!!

WM Support Ireland  AGM 2015 was held on Sunday 22nd March in the Rochestown Park Hotel, Cork.  

Five out of the thirteen members attended and we had an interesting and informative discusion over lunch.  

One of our younger members has recently finished a course of Bendamustine and hopes to have a Stem Cell Harvest soon.

Three members went to the EU Network meeting and the WMUK Doctor/Patient forum in London last August and found them most useful and informative.

Some of us hope to go to the IWMF meeting in Holland next year.

There was much discussion about the drug Ibrutinib and also about Dr. Steve Trion's gene research.

We wished each other well for the future and looked forward to meeting up again next year.

 

 

 

 

 

 

 


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Ireland

At the website of the Irish cancer Society you will find some information about Waldenstrom under the chapter "Lymphoma - Non-Hodgkin lymphoma" and than "Low-grade non-Hodgkin lymphoma" http://www.cancer.ie/cancer-information/non-hodgkin-lymphoma/about

 

For the  online WM Community RareConnect  in 5 languages (Deutsch, English, Español, Français, Italiano) click:www.rareconnect.org

For more information about WM from international organizations:
www.waldenstrom.eu
www.ewmnetwork.eu
www.iwmf.com

This is a website under permanent construction made by WM patients for WM patients.We will add new information in due time.
Disclaimer : By your use of the EWMnetwork for information and communication you relieve EWMnetwork of any responsibility
for the content of this website. Links to third-party sites appearing on this website are supplied for information only and EWMnetwork
cannot be held liable for the content or management of any such sites.